Two good topics here: those of us living with dementia get little support to live well; carers get more, it seems, and are listened to more. Remember the lepers in Ben Hur. Listen to us.
The last few days have been racked with a sadness after the loss of a friend with younger onset dementia; for many of us there has been a revisiting of our own mortality, and the issues many people with dementia and our loved ones discuss, especially in the early days following a diagnosis. The fear engendered by the hideous and negative media campaigns, the language of war being used to describe dementia, and the negative dehumanising and demeaning language to describe our experience… no wonder many think it is preferable to commit suicide. ‘Society’ is still determining it is not possible to live well with dementia.
The question so many of us have asked is this: should we take our own lives, to stop the ‘suffering’ that society tells us (repeatedly, and oh so very repetitively) we will experience?
As well, we have Alzheimer’s Associations and Societies who fundraise primarily to support the operation of…
View original post 691 more words